中间性 - 中间性性象谱

中间性的原因- 激素因素

先天性肾上腺增生性肥大(Congenital Adrenal Hyperplasia, CAH)

治疗与援助

治 疗                                                                                                                                           一些类型的先天性肾上腺增生性肥大能够运用诸如羊水诊断或绒毛膜取样的产前检查被发现。某些类型甚至在宝宝出生前就能够医治。如果在孩子出生时怀疑存在着先天性肾上腺增生性肥大的风险，因为一些新生儿会紧迫地需要作电解质替代疗法，所以作早期筛查是明智之举。为了校正现有的激素失衡，他们以及其他的大多数病人也需要一定程度的激素常规治疗。随着孩子的发育，这种激素疗法需要作出调整，并且必须延续到成年。整个疗程，从幼年到成年，也需要密切的医学观察和指导。一旦这些措施得到了保证，患者就能够很好地过着正常的生活。以往，孩子出生后的数周或数月内，针对“莫凌两可”的性器官，往往常规性地施行“矫正”手术。不过，现今的内科医生已经变得更加谨慎了。他们现在会邀请病童的双亲，并且考虑所有的可能后，尽量为孩子做出女孩的性别选择。他们因而一起会诊，以决定适合在什么时候施行什么样的手术，或者分析是否根本就不需要任何外科手术。这样慎重处理的结果是：许多外科矫正手术延至孩子年龄相当大的时候，或者经斟酌后干脆就予以取消。

援助社团
过去，患有先天性肾上腺增生性肥大的患者及其家人常常感到孤立无助，也发现难以获得更多的有关病症知识。然而，近年来，已经成立了许多援助社团。这些团体会乐意提供额外的知识，它们也在其他相关的网站建立超级链接，以提供帮助。例如这些社团(请点击下面的图标)：

Intersexuality - The Intersexual Spectrum

Causes of Intersexuality - Hormones

Congenital Adrenal Hyperplasia (CAH)

Treatment and Support

Treatment                                                                                                                                       Some forms of CAH can be detected in prenatal tests like amniocentesis or chorionic villus sampling. Some forms can even be treated before the baby is born. If there is a suspicion of CAH at birth, an early screening test is advisable, because some newborns will need immediate salt replacement. They and most others also require some regular hormonal treatment in order to correct the existing imbalance. The therapy needs to be adjusted as the child grows older and must be continued in adulthood. Close medical attention and supervsion are required at all times. Once these are assured, a person with CAH can lead a fairly normal life. In the past, “corrective“ surgery was routinely performed on “ambiguous” sex organs within the first weeks or months after the baby’s birth. However, today physicians have become much more cautious. They now involve both the parents and, if at all possible, the girl. They then decide together what kind of surgery is appropriate at what time, or if any surgery is not wanted at all. As a result, in many cases surgery is postponed until much later or even considered unnecessary.

Support Groups
In the past, persons with CAH and their families often felt isolated and found it difficult to learn more about the condition. However, in recent years, a number of support groups have organized. They will gladly supply additional information as well as links to other related sites. For example these groups (click on logos):